Stroke support groups are meetings for stroke survivors and their families where they are allowed to discuss issues about stroke with other people who have been in a similar situation. This support helps stroke victims overcome challenges and keeps them from becoming isolated. Many rehab hospitals offer support group meetings or at least will be able to refer patients to a local meeting.
Many people have apprehension about attending such groups, but one can also find support groups or forums online which allow for anonymity and privacy if desired. These groups can be one of the most valuable tools for both stroke patients and caregivers so the sooner one can become involved the better. Valuable information and encouragement can be gained from other patients and caregivers that have been through or are going through similar circumstances. It can be valuable for caregivers to attend a stroke patient support group, however, it is equally important for caregivers to get involved in a support group of their own so they can freely discuss issues that involve patient care without feeling guilty or worry about offending their loved on.
To find a support group in the UK, go to https://www.stroke.org.uk/finding-support/support-groups
https://www.reddit.com/r/stroke/ - a helpful community of people discussing stroke questions and experiences (a forum rather than specific stroke support group) - beware of scams/talking to strangers
If you have a national or online support group resource you would like added to this page, please contact the webmaster at email@example.com.
Have you had a stroke experience that you think will be inspirational or helpful to share with others? Provide your experience with rehab, being at home, dealing with doctors, etc. that you think will help other stroke survivors and caregivers.
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