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massive stroke with bone removed to relieve pressure

Question My husband suffer a massive stroke and had his bone removed from the right side. He had a tracheotomy. He can speak words with the speaking valve and its low. He is sleeping a lot until he can't get through therapy without falling asleep. I asked him is he sleeping at night. He said No its the noise. The Rehab place is pretty quite at night. I spoke to the MD about but she just shunned me off.


It has been a month since the stroke and now he is in intense Rehab 3 hours a day for six days. He can remember things and write things down its a little shaky. He doesn't have any movement on the left side at all. He has a feeding tube and still learning to swallow. His vision is off. I know he sees a little colors. He say he sees me. I really concerned about how things are going. He has to have surgery again to place bone back.

Will he be able to survive since he already had a massive stroke? This is the second one. The first one 4 yrs 2013 now 2017. I am scared of all of this and know my husband would not want to live this way. I have to go back to work soon and night school. I am afraid that I want get a chance to visit him daily. I feel guilty. What things will he be able to do and how long it will take. I pray that he don't have to go into a nursing home.

Please let me know how to cope with a sudden change in our lives. Thank you for your help!!

Answer: I am sorry that your husband and you are going through all of this. I know many caregivers are fearful and have many questions. I cannot make any predictions regarding recovery. It's best to talk to his neurologist about the prognosis. Probably the best advice I can give you is to join a support group. Other caregivers can help answer your questions and provide support as well as make suggestions for helpful resources. Sometimes people improve greatly after stroke. Many times people are left with long term impairments, but they can learn to adjust and still live fulfilling lives. Be there for your husband for encouragement and support. When you go to school and work, you are providing means for your family to make it and for him to get the healthcare he needs so try not to feel guilty. He will go through different phases of recovery and will deal with lots of negative feelings and emotions (as will you). Don't rely solely on yourselves. Reach out to friends, family and other stroke survivors and caregivers for support to get you through this.

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